Archive for September, 2008

Getting over the hump

I don’t know a lot of people who can donate that $115 that I need, but I do know many who can afford $5.

I’ll bet you do to. That is why we are offering a special prize this week to those of you who get just 5 additional donors to give $5 or more. It is our 5-5-5 prize. 5 donors x $5 = 5 free books! You have until Sunday, September 21 to get those five donors. Go for it!

Continue Reading September 16, 2008 at 6:16 pm

Working through Ike

We received this e-mail this morning from one of our participants and wanted to share this writer’s dedication.

“Who would have thought Ike would swing through northwest Kentucky?  Trees down, no power for at least another 72 hours, had to write on legal pad yesterday!
Week Two:
Total Word Count:   14,020 words
Total Pages Read:  6,431 pages
Laptop battery dying – send pencils!!!
See you next week (I hope!)

September 15, 2008 at 10:16 pm

You do the math

Never mind–I’ll do the math for you. What do we need to make our goal in the next two weeks?

As of Friday, we were at $6,663. That leaves us with $3,337 dollars to hit our $10,000 goal. We have 130 wonderful participants in our event. If each participant raises an additional $26 we will be over our $10,000. (In the neighborhood of $25.67 will get us to exactly $10,000).

$26 is easy–right?

Five, $5 donations will get you to $25. So–here’s the deal. We are going to be offering a 5-5-5 prize this week. Every participant who gets five different donors to give at least five dollars each will get five books.

That’s right–5 donors x $5 each = 5 free books for you!

Together we can make a difference for young people with Cystic Fibrosis today and in generations to come!

September 14, 2008 at 8:28 pm

New total is . . .

$6,663! Team dontation totals have been updated on the Teams page. Team reading and writing totals will be updated on Tuesday for those who report on Monday. The Wet Noodle Posse team continues to lead with $1845! Chocolate Mafia is hanging in at second with $790! Our top reader group is Team RBTB with $145!

Continue Reading September 12, 2008 at 7:39 pm

Life with Pirate Boy

Welcome Guest Blogger Colleen Gleason team leader for the awesome Wet Noodle Posse Team! The WNP Team is way ahead in the donations with over $1400 collected so far. Go Team!
So, I promised I’d write up a little about what it’s like to have a child with Cystic Fibrosis.

First, you’d never know by looking at my Pirate Boy that he’s got a fatal genetic disease. He looks like a normal, healthy ten-year-old.

Pirate Boy

Pirate Boy

Some CF kids are thin and slight, and many are fair and pale (my son is more fair than his sisters, but I’m fair-skinned, so I’m not sure if that’s genetics or not). They also get what’s called “clubbing” on the tips of their fingers. Their fingers can get a little thicker at the tips.


Do this: put your two thumbs together, knuckle to knuckle. See the elliptical space between your nails? Lots of CF kids don’t have that space; their fingers are thicker at the ends. It’s not hugely noticeable unless you’re looking for it.

Anyway, for those of you who are wondering exactly what CF does: in a nutshell, it causes the body to produce a thick, heavy mucus that clogs the organs–especially the lungs and pancreas. This means that any sort of bacterial infection in the lungs is super serious, and that what might be a simple cold or flu can turn into a major problem for a CF kid. Usually, it’s complications with lung infections that cause the death of a CF patient.

Also, the clogging of the pancreas means that the digestive enzymes can’t move from the pancreas to the small intestine, and therefore fats and some other nutrients can’t be absorbed. This means that CF patients need to eat large, high-calorie meals and take digestive enzymes every time they eat…anything. Any. Thing.

So for Pirate Boy, I get him up for school in the morning and we do his morning breathing treatment. This consists of an albuterol treatment through an inhaler and spacer, along with a nebuilzed (misty) dose of Pulmozyme. Both of these inhaled medicines work to open the lung’s airways, and then to break down the mucus that could be clogging there. Also, Pirate Boy puts on a special vest that is attached to a machine that vibrates his chest.

He wears this vest for 20-30 minutes twice a day. This, along with the lung medications, works to keep those lungs open and the passageways clear, and to break down the mucus. It all works together.

Pirate Boy usually reads or draws or plays with his WarHammer figures, or pirates (he’s not called Pirate Boy for nuthin’) during his treatment. He’s used to it, and although most of the time he does it without hassle, there are moments. :-)

So then, every time he has a meal or snack or anytime anything goes in his mouth (except water), he needs to take his digestive enzymes. He has to take them as he’s eating, or they aren’t effective. He also has to eat a high calorie, high fat diet. This becomes a problem with us for a few reasons:

1. The rest of us don’t need cheese or butter or whatever on everything we eat!

2. Pirate Boy is a veggie eater…and he doesn’t like Ranch dressing. (The nutritionist would think she’d died and gone to heaven if he would eat his veggies dipped in Ranch dressing. But not my Pirate Boy. He likes them fresh and raw and unadorned.) He doesn’t like cheese on his broccoli or cauliflower. Or on his hamburgers. Or fries. He doesn’t like tartar sauce on his fish. The kid eats wayyyy too healthy! (Ironic, isn’t it?)

3. We’re always nagging him to eat, eat, eat. I know he gets tired of hearing this, but it’s so important for a CF kid to eat often and well. Since they have to overcompensate for their malabsorption problems (ie, the fat and calories not digesting properly), it’s important for them to eat extra. And not only that, but being at a healthy weight makes it easier for them to fight off any lung infections when/if they come.

He’s old enough now that he gets his own snacks, and sometimes he forgets to take his enzymes. (Not always; he’s getting better.) If he does, what happens? Well, the food pretty much goes straight through him and out the other end. We can always tell when he’s missed a dose of enzymes!

So, this means every time he goes to a friend’s house or to any sort of event, he needs to take enough enzymes with him. And he needs to remember to take them. (That’s the hardest part.)

And then the kids see him taking medicine whenever he eats, and he does get tired of explaining why he takes them. Fortunately, he’s not at the stage where it bothers him or makes him feel “different” (although I know that is coming)…but as he puts it, he simply gets tired of saying that it’s medicine that he has to take to help him digest his food.

It’s really interesting and heartwarming to me that people who meet Pirate Boy recognize that there’s something different about him. And there is–and I don’t mean his CF. There’s an aura about him, a sort of glow, an energy or a deep happiness…something. I’m not kidding, and I’m not saying this because I’m his mom. He has a “way” about him…that’s the only way I can describe it.

When he was a baby, I went to a psychic at a psychic fair. I told her nothing about myself except that I was married and had two children. She said, “Your son. Does he have asthma? Or something with his lungs?”

“Er. Yeah. He does.” At first I thought she was going to say he was going to die or something!

She looked at me and said, “This boy is very special. He is going to really make an impression on a lot of people. Really make a difference in their lives…to a lot of people. He’s really special.”

Well, I already knew that. But she said that, and it’s stuck in my head for years now…and I’ve found it to be true. There’s something about Pirate Boy. Anyone who’s met him can tell you that.

So I thank you all so much from the bottom of my heart for supporting our endeavors here to raise money for him and for other CF kids–kids who aren’t at their optimal weight, who are in the hospital every quarter, who just can’t seem to get healthy. Thank you and God bless.
Colleen Gleason
http://www.colleengleason.com/
Wet Noodle Posse

September 11, 2008 at 6:13 am 10 comments

A Message from Debbie Macomber

Debbie Macomber photo by Nina Subin

Debbie Macomber photo by Nina Subin

This appeared on Debbie’s Blog

September 9, 2008

I had quite a day yesterday. I was in the pool swimming my half mile at six in the morning, had a conference call with my publisher at eight and two lengthy radio interviews before I had to rush off at noon to speak at the Senior Center here in Port Orchard (aka Cedar Cove). Then I went home to cook dinner for twelve. Will someone please play the sound track from the movie Rocky!!?

For those of you who are Keeping Pace with Debbie at www.unleashyourstory.com (a fund raising event for cystic fibrosis) I was working on revisions all last week and it’s too hard to calculate an exact word count. However, hold on tight as I’m gearing up to start another project this week.

Watch Debbie’s progress on her Pacesetter Page

September 10, 2008 at 7:05 pm

Catching up

Also check out the Teams page where we are posting the team donation totals when we get them as well. Please feel free to cheer on your favorite team by writing comments on the Teams page. I also have links to most of the Teams websites and blogs as well as links to their Unleash Your Story donation page.

Continue Reading September 10, 2008 at 6:30 pm

Just do it (let those words come)

Welcome guest blogger, author Leanne Shawler

When I found out about Unleash Your Story: Make A Difference, I was excited to join in for two reasons. The first is, that even though I am published, I was in a bit of a writing slump at the time.

All right, let’s make that a giant writing slump. As in no writing. At all.

It was a darn good thing that I wasn’t on deadline.

Which was part of the problem. I’d gotten used to writing to deadline, pacing out my pages, but without it, writing could always wait until tomorrow.

Writing never waited until tomorrow when I was unpublished!

So it took me a little while to reorganize myself and get going again. There are plenty of stories I wanted to tell but suddenly I just didn’t have the time. (Going back to work almost full time didn’t help.)

In the end, I just had to sit down and do it. I took back my lunch hour and spent it isolated from the rest of work, cranking out pages and getting stuff that surprised me. That’s what I love about just typing without worrying about grammar or spelling or how many times I’ve used a certain word. The characters start speaking to me and doing stuff I had simply not planned.

And this coming from someone who’s a plotter! (Ok, so I’m actually a mix of plotting and pantsing.)

Another great helper for me to get going was to get an AlphaSmart. They’re nifty items where you can’t do anything but type: no games, no internet. I started taking it to work and my lunch hour got so productive that I didn’t have to write once I got home!

So it took a slightly expensive tool (and then the need to justify that purchase) to get me going with my writing, so hopefully you won’t have to spend your hard-earned cash on a writing product instead of giving it to the Cystic Fibrosis Foundation!

And that’s the other reason why I’m participating in this event. My second cousin had cystic fibrosis. They lived about three hours away from us, so we didn’t see them often, but they came to stay with us once, and then we discovered just how much this family went through each day just to keep their daughter in good health.

OK, so by now you know what CF is, so I don’t need to go into that. But the memory of what this bright-eyed, red-cheeked (her big sister had rosy cheeks too) little spark had to go through just to breathe is impetus enough to write more and write faster.

She died when she was eight.

That’s enough for me to write, even if my pace is not up to our illustrious pace-setter.

We all do what we can, and now you can too. So stop reading this and get writing!

Leanne Shawler http://www.leanneshawler.com

September 9, 2008 at 6:43 am 2 comments

New total! $4,943

Holy smokes! What a great week!

I just received a new update–the correct total is now $5188

September 8, 2008 at 3:33 pm

Unleashing those stories: Week Two

Announcing our Week Two Leader Prizes!

• Word Count Leader: The person with the highest total words written by Sunday, September 14, 2008 will be awarded one of the books in the “For Pages and Words” list on our Prize Page.

• Page Count Leader: The person with the highest total pages read by Sunday, September 14, 2008 will be awarded one of the books in the “For Pages and Words” list on our Prize Page.

• The Donation Leader: The person with the highest total dollar amount of donations as of Sunday, September 14, 2008 will win a choice of: Nocturne Basket, Critique by Debra Dodgett, or Cover Space for one year at Romance Junkies.

• The Week Two Donation Leader: The person who earns the highest total dollars in donations between Monday, September 8 and Sunday, September 14, 2008 will win a choice of: Devilish Good Times Package, Critique by Teresa Bodwell, or Book Cover Pin

• The Drumming up Donors Leader: The person who brings in donations from the greatest number of different donors regardless of dollar amount will win a Twelve Pack of New Romances Donated by Michelle Buonfiglio’s Romance: B(u)y the BookR at Lifetime Television’s myLifetime.com.

You can find more details about the prizes listed above on our Prize Page. As always, send your questions to: info@unleashyourstory.com

September 7, 2008 at 9:53 pm 1 comment

Older Posts Newer Posts


Donate now!

Support for your fellow readers and writers while you help fight cystic fibrosis! It's easy to donate online. Thanks in advance for your support!

How we’re doing…

In 2008, Unleash Your Story raised $11,366 for the Cystic Fibrosis Foundation. Our 2009 goal is $23,000. Dollars Raised
Free fundraising thermometer

What is Unleash Your Story?

A combined read-a-thon and write-a-thon that challenges readers, writers and published authors to unleash their stories and make a difference.

Our 2009 goal is to raise $23,000 for the Cystic Fibrosis Foundation, the leading organization in the United States devoted to cystic fibrosis. Register now!.

Questions? Check out our FAQs.

Subscribe to Unleash Your Story: Make a Difference by Email

Unleash Your Story

↑ Grab this Headline Animator

find_us_on_facebook_badge1

More questions? Check out our FAQs.

Can't participate in the read/write-a-thon? Click the UYS logo to donate directly to the Cystic Fibrosis Foundation.

sm-uys-square

Print our 2009 flyer to help spread the word.

Support This Site

Pacesetter Author

Lori Wilde is our 2009 Pacesetter Author.

Lori has sold 47 books to 4 major New York publishers--5 books coming out in 2009. She's prolific and dedicated to writing regularly to keep up with all those deadlines!

Lori promises to set a sizzling pace for all our writers to follow! Her goal for the event is 60,000 words!

To learn more about Lori, visit her Pacesetter Page

Michelle Buonfiglio Pacesetter Reader

We are proud to have Michelle Buonfiglio as our 2009 Pacesetter Reader.

Michelle hosts Barnes & Noble.com’s new “Heart to Heart” (H2H) daily romance fiction blog and is the creative force behind RomanceBuyTheBook.com (RBTB), a fun and positive place where readers and writers hang to talk love, sex, family, life -- and, of course, romance novels

Michelle's goals are to read 10,000 pages and write 10,000 words in her blogs and comments.

To learn more about Michelle, visit her Pacesetter Page

Look up posts

Feeds


Follow

Get every new post delivered to your Inbox.